Contributions are critically needed to advance development of effective treatments. Please help as we seek to improve the lives of those affected by EDMD. cureEDMD has partnered with Rare Village Foundation, an established 501(c)3 nonprofit, to collect and administer tax-deductible donated funds which are then allocated to research and treatment development at cureEDMD’s direction.

Contact us if you are interested in contributing at a game-changing level or if you are interested in contributing your talents and hard work to the search for a treatment or cure for EDMD.

If you are a patient or the parent/guardian of a patient: Patient registries are critical to developing a treatment or cure. Please complete applicable patient registrations as explained on our Resources page.

If you are a researcher, biotech or pharmaceutical company interested in partnering please contact us.